ROUND 2 We’re home! We got a huge and welcome surprise during rounds this morning when they said Hudson could be discharged! I had already calculated his ANC from his lab results on MyChart, so I knew he was only at 170, and I was expecting it would need to be a bit higher before they let us go. But the oncology team felt he could finish recovering at home, so we happily packed up and headed south!

We got GREAT news during rounds this morning - Hudson’s MRI was clear with no signs of disease! Thank you, thank you, Jesus! 🙌🏻🙌🏻

9:00pm - Hudson had a busy day! We had to wake him early for his MRI under sedation, and he wasn’t too happy about it, nor was he happy after waking from sedation (can’t blame him really - poor kid wanted to sleep!). After some breakfast and play time, he had an EEG. He’s been taking anti seizure medication since the day his tumor was found, but he may get to come off the med if his EEG looks good (still awaiting results and follow up with neuro).

UPDATE (8:00pm) - After briefly waking from anesthesia, Hudson napped until after 5:30! When he woke up he wanted a “nack” right away and ate a whole bag of cheez its and part of a second bag. He also ate some mac and cheese and drank lots of water.

Hudson continues to keep us on our toes. His ANC is 0, and he got platelets again this morning. His appetite is pretty low (only ate cheez-it’s and a fig bar today ), and he was definitely not as happy/playful as normal. And he refused to nap, so let’s just say we’re both worn out tonight.

Welp, here we are again. Hudson had his psychologist appointment for developmental testing today (pre transplant requirement) followed by a clinic visit for his vincristine infusion and platelets. We got up early to make it to his testing by 8am (he did great on the Bayley until he decided he wanted to be done and kept trying to leave the room.